Participant Information Sheet
The following survey is a part of an honours project currently being undertaken at the University of South Australia. This project is investigating whether new technologies such as Augmented Reality (AR) could have a benefit in education for those newly diagnosed with cancer. Prior to designing and creating an AR-enabled education tool, we believe it is important to gather an understanding of the thoughts, perceptions, and beliefs of those who have had or are going through a cancer diagnosis. We strongly encourage you to participate in this survey, such that we can properly design an education tool that would be useful for people who have had a recent cancer diagnosis. This will aim to have a range of benefits to these people, by providing, clear and useful information in an interactive and easily comprehensible manner.
This survey will take approximately 20 minutes to complete. This survey has up to 42 questions. There is a mix of multiple-choice and text answers. You will remain anonymous and your answer will be confidential.
You are eligible to complete this survey if you fall into one of the following groups:
- Currently undergoing treatment for cancer.
- Cancer survivor currently in remission.
- Are an immediate family member (spouse, parent, sibling or child) of an individual undergoing treatment for cancer.
After consenting to complete this survey, you will be asked to provide basic demographic information about yourself and your current health. You will then answer some questions relating to how you seek health information. Then questions will be asked about your perceptions of Augmented Reality. During this last section, you will also be shown a video regarding Augmented Reality and will be asked to comment further.
Upon completion of this survey, you have the option to go into the draw of winning 1 of 3 $100 gift cards of your choice (excluding the purchase of tobacco and/or alcohol). To enter the competition, please enter your email address in the section provided at the end of the survey. A summary of the overall survey results will be sent to the email address you provide upon its completion. The email address you provide will not be linked to any of the data entered throughout the survey, ensuring the data you enter remains anonymous and confidential.
If you would potentially be happy to provide more detailed information about your experience in an interview format sometime in the future as part of a future study, please select the box at the end of the survey and provide your contact details. This study will undergo a separate ethics application and consent process. Your details will not be shared for any other purpose than contacting you for potential involvement in a future study to gain more details about your experience and thoughts, or to notify you if you were randomly selected as one of the $100 gift card recipients for this survey.
You can withdraw from the survey at any time, by exiting the internet browser. All information entered to that point will be deleted by the survey administrator. However, please note as we will be not collecting any information that allows us to identify you, we cannot withdraw your answers once they are submitted.
Data Management and Privacy:
All data entered into this survey will be stored on the RedCAP survey platforms, in two University of South Australia onsite data locations. Only relevant investigators will have access to the data and your data will remain confidential and anonymous at all times.
All information as a part of this study will be retained for five years and transferred to a University of South Australia secure archive upon completion. Once this time has passed the data will be destroyed and verified with the assistance of the UniSA IT services.
It is not anticipated that there are any risks to participation in this study beyond those encountered during everyday life. However, as we are talking about you, and your health, at any time if you experience unwanted feelings and wish to discuss these, website links and phone numbers have been provided below to services that can be of assistance.
We intend to publish the results. At all times, data will be un-identifiable.
This project has been approved by the University of South Australia Human Research Ethics Committee (UniSA HREC) (no. 203877). If you have any ethical concerns about the project or any questions about your rights as a participant, please contact the Executive Officer of this committee via the below methods.
Participants or third parties who wish to lodge a complaint about either the study or the way it is being conducted should contact the Executive Officer of the University of South Australia Human Research Ethics Committee (UniSA HREC).
HREC Executive Officer:
Phone: +61 8 8302 6330
If you have any questions or require further information, please do not hesitate to contact the Primary Investigator:
Phone: +61 04 5052 1379
We thank you for your time.
The Research Team:
Mr. Joshua Launer
Associate Professor Kristin Carson-Chahhoud
Dr. Zoe Kopsaftis
Professor Eva Bezak
Associate Professor Ross Smith
If you wish to contact someone about any unwanted feelings and wish to discuss these, please contact:
24/7 Support Service: 1300 22 4636
24/7 Crisis Support: 13 11 14